Rare Disease Network
You Belong Here. TM
The Rare Disease Network (RDN) along with Calvin University, Corewell Health Helen DeVos Children’s Hospital, MSU College of Human Medicine, Pine Rest Christian Mental Health Services and Van Andel Institute, works to bring together people with rare diseases, caregivers and families, medical professionals, researchers, advocates and students to share knowledge and experiences, while encouraging and supporting one another.
What Our Community Says About RDN
Gives Me Hope
“Seeing scientists, doctors, families, and so many others all in a room together shows me that I have support. It also gives me hope.”
Tammy, Rare Caregiver
Offering Valuable Connections
“The Rare Disease Day event allowed me to connect with other individuals living with rare diseases, creating a strong sense of community and shared understanding.
I was able to network with organizations and advocates who are passionate about raising awareness and improving resources for those affected. The event gave me not only valuable connections but also sense that we are stronger when we stand together.”
Kyle Friar, Rare Patient1
A Transformational Commitment
“I am forever grateful to have found the Rare Disease Network. As the parent of a child with a rare disease, I believe the network’s commitment to supporting families like ours, is transformational. On a personal note, the resources and programs that RDN offers have provided us with the tools and knowledge needed as we navigate life’s challenges. On a professional note, RDN provides space for the families that I serve, at work, to navigate challenges and achieve their personal goals. I’m deeply appreciative of the RDN and their dedication to families living with rare diseases.”
Brandi Berry, Rare Caregiver,
Public Health Program Supervisor, Community Wellness Division
Kent County Health Department